Tuesday, July 16, 2013

Small victories

Sunday was a rough day, but yesterday and today have been better. 

Yesterday Sutton and I met with the lactation consultant and she gave us some new positioning to help with latching. Thank goodness for her because now Sutton is nursing like a champ. He even gained 60 grams last night! Kedric and I suspect he's trying to get fat and get home :) He is still getting supplemented with breastmilk through his NGT after nursing despite nursing well. This is because he tolerates it without spitting up and the more he is willing to eat and able to tolerate, the more pounds he will pack on. After a good couple of days of weight gain we will reassess whether the supplemental feeds are still necessary. 

Another small victory from yesterday was that, for the majority of the day, Sutton was quiet. He breathed and sounded much like a normal baby. Today he is more stridulous than yesterday, but overall he is still less coarse sounding than he has been. 

Today he will move into a new room. One of his buddies made parole and that baby happened to be in a room with a door and walls. Since mama is with Sutton 24 hours a day and we are nursing and blocking up the hallway pretty regularly, they put our name on the private room. Yay!

Otherwise, nothing new. Much of our remaining time here will be spent watching and waiting to determine if his hygroma and/or airway will require further intervention. 

I do have more pictures of Sutton on our camera, but I have not had access to a computer to load them. I'll get them up as soon as I have an opportunity. As always, thank you for the continued support and prayers. Maybe this little beef cake will surprise us a get an early release date. One can dream, right?!


2 comments:

  1. Your updates are appreciated. Even those of us far away and much removed from your everyday life are rooting for Sutton. You are eloquent and inspiring. We are very impressed with how you've handled this challenging chapter.

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  2. Keeping your family in my thoughts and prayers. Your little looks so precious!

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