Our primary ENT and the pediatric surgeon have discussed their assessments and the options with us. The area that has been resected is approximately 5 cm and this is too large to attempt to fix at this time. Even under ideal circumstances, we would be looking at another 4-6 hours in surgery in an attempt to repair the esophagus and for an infant that has been under heavy anesthesia for 10 or more hours already, this could open Pandora's box of potential problems.
For now: they will suture off the ends of his esophagus and leave it unattached. They will insert a G button after his neck is closed up and he will receive his nutrition through tube feeds. The pediatric surgeon would like his neck and esophagus to heal for at least 3 months before he attempts to repair the esophagus.
At the time of repair: If it is feasible, he will reattach the ends of Sutton's remaining esophagus. This is the best option, but if it would require too far of a stretch, he will likely take a different route. Stretching the esophagus to reattach it would only cause greater problems down the road with stenosis (narrowing) and issues choking. If that is not a feasible option, the missing area can be replaced with part of the small intestine or colon. It is not the best option, since that is not what God intended those parts to be used for, but it works in a pinch. He would be able to eat, drink and grow like a normal kid.
Pray for our doctors. I'm certain they are physically, mentally and emotionally exhausted. This is not what they hoped for and they are working very diligently for the best possible outcome. Pray for Sutton. Eating is the joy of his life, so we are thankful he will not remember this. Pray for a speedy and otherwise uncomplicated healing process and for his comfort.
We are ready for the sun to rise on tomorrow. A bright, new, hopeful day. And one step closer to a normal way of life for him.
Thanks so much for these updates. Hoping for a very sunny day tomorrow.
ReplyDeleteLove you guys.