Monday, June 16, 2014

8:32 p.m. update

Both physicians have emerged looking tired and disappointed. They have called in a pediatric surgeon because the issue is not simply a tear in the back of his throat. After much difficulty attempting to repair what they thought was a tear and being unable to get an NG (feeding) tube placed, they realized that the problem was a missing portion of his esophagus. It was too rooted in with the hygroma and they are not certain that the damage will be immediately repairable.

The pediatric surgeon will be here within the next 10 minutes, but we are looking at several more hours in surgery. I didn't even ask about healing time. There are several surgical options, and our ENTs have addressed some of them with us, but they want the surgeon to speak with us after he has seen Sutton.  He may require a G button which is a temporary (can be very short term or could be used for years, if needed) feeding site in the belly that allows for tube feeding.

We are not reassured by the look on the ENTs faces, but Sutton is still stable and it seems they feel more disappointed that they have let us and Sutton down than that something will continue to go wrong. But, we know they have done everything within their abilities to make this as successful as possible and we continue to trust in their discretion as we move forward. Please pray for a successful evaluation and repair for Sutton. That kid will be more disappointed by an inability to eat by mouth than anything else.

Please also pray for no additional setbacks. We sure are tired.

No comments:

Post a Comment