Cohen is always so sweet to share his toys with Sutton. He will usually find his smallest cars and line them up around the baby so he can "play" too. Sweet boys :)
Wednesday, October 30, 2013
Wednesday, October 16, 2013
Update on Sutton
About a week and a half ago Sutton had a busy day of follow ups in St. Louis. His appointments with ENT and Newborn Medicine were, thankfully, unremarkable. ENT asked us to contact our pediatrician to begin the process of getting Synagis, a preventative for RSV, set up for him to receive since he is considered high risk with his existing airway issues. We ask for prayers in hoping they will start the series even though Sutton is technically without any insurance coverage at the moment - it is extremely expensive and could be cost prohibitive (though I am not sure of the exact cost at this point).
To be clear Sutton will have coverage, it is just not active now. Prior to the decision for me to stay home with the boys and just work PRN at the hospital, I carried our insurance. With the reduction in hours came the loss of benefits and with Kedric's insurance policy, Sutton's current physicians and Children's Hospital are out of network.
We had discussed obtaining new physicians and utilizing another facility but, for several reasons, we are not willing to switch prior to the surgical removal of his hygroma and utilizing out of network physicians is not something we are able to do in this case. So we have to file all of the paperwork for Sutton remain on my insurance policy through COBRA and, when that is complete, they will back date and cover everything. However, the provider of Synagis may not allow us to do that and may require us to pay out of pocket and deal with being reimbursed later by the insurance company. Oh the excitement of healthcare and insurance. Enough about that.
Big guy also had his extended hearing screen for the referral of his right ear at the time he was discharged from the NICU. I was a bit concerned because, if he did not sleep for at least an hour without interruption he would have to be sedated in order to complete the test. He's been sedated enough in his short life so I was pretty adamant about avoiding it if at all possible. Despite a day of being poked and prodded he cooperated like a champ. Great news: he has completely normal hearing in both ears!
I can't express my gratitude for how God has watched over and protected our sweet boy. I did have underlying concerns that the hygroma, being wrapped around nerves and vessels, had damaged his hearing. But it seems when he was pieced together the only misstep was the cystic hygroma. That just boggles my mind. I find it so amazing that, in the rapid division of cells that occurs for a human to develop, there was an error in the formation of his lymph tissue and then the errors stopped. Instead of continuing with more errant cell division that reasonably could have led to numerous other problems it just stopped. And everything else turned out how it was supposed to. Phenomenal. I am beyond grateful.
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